Fundraiser for Tyler

SBH Disability Services is committed to sharing the stories and experiences of our community. Many people in our community live full lives in pursuit of their dreams and potential, however, sadly, from time to time we lose members of our community. As you will read below, Crystal’s story about Tyler is one of loss. Crystal shares her story as a way for Tyler to be remembered and to raise valuable funds that provide support to parents pre-birth and post-pregnancy.

TYLER’S STORY: Words by Crystal

Our Journey was a whirlwind of emotions.

Tyler was a huge surprise. We couldn’t wait to meet him, wondered who he would look like, whether he would be like his siblings, what type of personality he would have and the memories we would share.

Tyler was medically diagnosed with myelomeningocele, hydrocephalus, neural tube defect, Chiari type II malformation. Doctors prepared us for the worst. As quickly as the excitement of bringing Tyler into the world started so did feelings of uncertainty about what his future would hold.

Tyler sadly passed away on the 7th of June 2019.

It has been overwhelming to understand our son’s condition, access resources and come to terms with his loss. Our experience preparing for a child with SBH was very difficult.

In Tyler’s memory, we hope to bring awareness of SBH and help other families going through similar journeys.

Through the work of SBH Disability Services, we want to provide new parents with resources, access to information and practical support. We faced a lot of uncertainty throughout Tyler’s journey but through your generous support, other parents don’t have to as well.

– Crystal

CONNECT WITH OUR FAMILY WELLNESS PROGRAM

The Family Wellness Program is an initiative that provides support to the entire SBH community including new parents.

It does this by delivering social work services not only to people with Spina Bifida and/or Hydrocephalus, but also to the people closest to them, such as parents and siblings. This approach ensures that families are supported in their entirety.

If you know any new parents who need support please pass on the details for the Family Wellness program.

CONNECT WITH OUR SOCIAL MEDIA

DOWNLOAD OUR NEW PARENTS FLYER

CONNECT WITH OUR FAMILY WELLNESS PROGRAM

The Family Wellness Program is an initiative that provides support to the entire SBH community including new parents.

It does this by delivering social work services not only to people with Spina Bifida and/or Hydrocephalus, but also to the people closest to them, such as parents and siblings. This approach ensures that families are supported in their entirety.

If you know any new parents who need support please pass on the details for the Family Wellness program.

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